So I haven't posted in a bit. Sorry. I am sure you all wait with baited breath for these posts. After all, I'm sure they are the central reason for your very existence. (I can hear those eye rolls.) But, alas it has truly been a roller coaster ride this hospital stay. First, it turned to be the flu. (Sorry if we exposed any of you.) The flu with a secondary pneumonia meant two antibiotics, one steroid, one antiviral, and a partridge in a pear tree. The meds, when added to sick little kid with an already stressed out body, led to severe gastritis and an abdominal bleed. Which led to a severe anemia. And a freaked out pediatrician. And two units of blood. And one triple lumen cath in her groin. And an ambulance ride to another city, another hospital. Which I am severely pissed about. (I don't think this hospital is the right place for her.)
But here we sit, well into week two of our hospital stay. Her lungs are healing (yayyyyy). Her hemoglobin count is on the rise (double yayyyyy). They will run a few tests tomorrow to make sure it was just gastritis. If she can only just stop randomly popping a temp, we may go home soon.
And here, right here, is one of the everyday realities of being the parent of a disabled kid. Feisty Pants is awesome and fun, like any kid. What she isn't and never will be, is predictable. We never know when the next cold will led to a ventilator. Or when the cure for the illness will be harder than the illness itself. Or when she will simply react to an illness in bizarre and colorful ways. As a parent, you must dig down and get tough enough to withstand this. Trust me though, you got this. You can do this. If you need any inspiration after all, just look at the toughest human being you know, the one right there in the hospital bed.
No comments:
Post a Comment