Well, I am feeling quite cranky today. I shouldn't be, but I am.
I should be really zen right now. We are home safe and sound from the
hospital. Feisty Pants is getting feistier by the day. The house is slowly
coming back into some semblance of order. We always rip it apart when we get
transferred out of town. I can pack efficiently and quickly OR I can do it
neatly. Take your pick. And then we wreck it again when we get home by
unpacking. We are getting all the crazy stuff done that we have to do to get FP's
life back into shape. Restarting routines, restarting standing appointments,
getting the medication regimen back on track. Filling out all the "Why, yes,
she can go back to school, therapies, life" paperwork. Notifying all the very
patient care givers in Feisty Pants' life to put her back on all their
schedules. It's a minor pain, but not an unhappy chore. It means things are
going right for the moment. We are even oh so slowly catching our collective
breath and not feeling like we have to stare at her every single effing second.
And she has only pulled her g-tube once since we have been home. (That is a
good record for a bored FP . She is having a little mercy on us.)
She even found her birthday cake flavored birthday cake mix at
the store for her small b-day dinner tomorrow. (The big
grandparents/birthday/shopping/pizzapalooza weekend comes later in between both
girls' birthdays) And it is too birthday cake flavored. It says birthday cake
right on the box where other boxes say vanilla or devil's food.
So all in all, this week has turned out to be pretty good. We
are all home. My kid is well and truly on the mend. We have caught up on most
of the stuff around here. So, why then do I feel cranky? I would like to tell
you why. A little bit is leftover stress. Sort of an emotional detox from all
the worry when she was sick. The flu sucks when you are a typical healthy
person. It is DANGEROUS when you have health issues. She was sicker than we
have seen her in a long time. This will simply take a while to work its way out
of our systems. But that we are used to. The thing that really getting on my
last nerve is frigging Daylight Savings Time. I hate it. Sleep deprivation is a
constant companion when you have a disabled kid. A hospital stay really ups
the ante on sleep loss too. And now, just as we have the chance to get back to
the insanity that passes for normal around here, society wants to take away that
most precious of commodities, a whole frigging hour of sleep. And for no real
good reason. It does not save energy. We are no longer fighting the Kaiser.
Why do we continue this silly farce? I think some like it simply because it
reminds them summer is coming. I don't want to be reminded that my favorite
time of year is almost over. You people all run around acting like losing sleep
is worth it. It's not. I just want to hit the snooze button and have a few more
weeks of starlit bliss. Daylight savings is awful, terrible, no good, and
mean. It is the drunk who picks a fight at the party. It is a toddler with
chicken pox having a temper tantrum. It is an EMPTY coffee maker. It is a cold
sore on prom night. It bites. I hate it. And the next person who says, "Isn't
this nice? It's light later now" is getting a giant wedgie. You have all been
warned.
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