While I am still feeling smug for doing something five year olds do with ease
(links are hard whinewhinewhine) I decided to do another post I have been
thinking about for a while. The following are some links to great sites for
parents of disabled kids. This definitely only a beginning, but here a few that leap out at me immediately.
Wrightslaw- a site run by a legal firm that specializes in educational advocacy
for special needs kids. Lots of links to articles and tips for becoming a
better advocate for your child especially in the IEP process. They also offer
books and seminars if you are interested.
SenSwitcher- a fun program for small children or kids with visual
impairments. Provides great visual stimulation for kids. (Older kids with
normal vision may be bored but not always. I have seen adults play with it.)
Explore.org- not just for kids. Has a section of live webcams for all
sorts of things. Jellyfish, Coral reefs, Beluga whales, puppies, bears, etc.
The jellyfish cam keep Feisty Pants entertained (and provides the exact right
kind of visual stim for her) for like, forever. I defy you to try one of the
live cams and not become completely entranced.- note this link I think takes you directly to the brown bear cam (the last one we were watching) but if you scroll down the page you can easily see the links to all the other live cams.
Clinicaltrials.gov- just what it says. A site to search for clinical
trials and recruiting studies.
Feeding Tube Awareness Foundation- a great site when starting down that
g-tube journey or to network with other parents.
My Child Without Limits.org- a site for kids 0-5 years with developmental
impairments or disabilities. Great for the preschoolers, but a good starting
point to jump off to other sites. too.
United Cerebral Palsy- Feisty Pants has CP but usually there is a site for
every particular condition. (Just google the "name of condition"
+advocacy)
Self Advocacy Association of New York State- because nothing is so empowering as finding out how to use your voice or helping someone else find theirs. If you don't live in NY, just google self advocacy + name of your state.
So, I figure this is a good start.Woefully incomplete but a good place for beginnings. Feel free add your own faves in the
comments. I'd love to see what jumps into your mind first.
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