I love my kid. I truly, truly do. Forget whatever romance movie,
hallmark card, valentine's day crap you learned about falling in love with your
significant other/emergency contact person. You do not know what it's like to
really fall in love until you look into your child's eyes for the first time.
Feisty Pants is awesome and sly and amazing. I even love her sister, Hippie
Pants, who is funny and kind and smells good all the time. Having said that, if
I don't frigging get a break from the bitching soon, I am running away from
home. Or selling them at a yard sale cheap. If you buy them both, I will throw
one slightly used and dented Goo for free.
Sigh. So Feisty Pants is sick again. Not scarily so. It's
merely an upper respiratory infection/sinus infection/really bad cold. She is
just sick enough to be stuck at home on oxygen and antibiotics. And mad about
it. Everyone else on the entire planet is out riding their bikes. But no, not
her. Everyone else on the entire planet is going to her cousin's most awesome
birthday fete and FP has overheard her mean parents wonder if they will make it
or not. Who cares if she is still on oxygen and just exactly what are they
implying about a week of antibiotics and they know what that means, hmmmmmm?!?
And she is being so cooperative right now. FP has even managed to clearly
verbalize a new sentence. "I sick. Leave alone!!!" She is even interspersing
this with "Come here. Nownownownow!" Just to show how hard she is working at
communicating. But is she getting ANY respect for all her hard work? No, just
unreasonableness from those old farts. Why should she get dressed, not pull her
feeding tube, not whine twelve hours straight, not sing opera at 3 am??? How
dare we torture her with boredom and pants and food?!? So what if she is sick
and needs the rest, sleep is for kids who get to do things and she NEVER EVER
EVER gets to do anything fun. EVER. And her head hurts. So please hold her.
But don't touch her because she is sick and you are all annoying right now. Why
aren't you holding her?
Sigh, this is one of the paradoxes of disabled kids. The
determination that keeps them going through illness, disability and often pain,
is the same stubbornness that makes their parents softly bang their heads
against the wall. Nothing for it really. You just gotta learn that it is not
personal, it shall too pass, soon enough, the kid will be feeling better,
happier and finding new and more exciting things to bitch about. Until then
there is always coffee, chocolate, and tequila. On second thought, forget the
tequila. That may be part of how we ended up with these kids anyway.
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