I have not much to do, except sit here feeling unhelpful. So
I have time to think of all the things I wish the universe has but doesn't. Like
changing tables for kids bigger than 35 pounds. (Go ahead try to change a kid in
pull ups when they are 12 years not 12 months. Bathroom floors are disgusting. I
won't put my purse on one, let alone my kid. FP passed getting changed on my
lap 11 years ago.) Toothpaste and fluoride treatments in flavors my kid likes.
(They make vodka in whipped cream flavor. Why not fluoride? You can get latex
gloves in banana flavor. Why not toothpaste?) Mostly I sit around in moments
like these and wish the medical profession as a whole researched cures instead
of treatments. I long for the day when there is either a stem cell treatment
for CP or, at the very least, a quick solution for the spasticity that contorts her
muscles and limbs and makes her life painful on top of difficult. I also wish
for a roomba like coffee maker, that would follow me around and dispense lattes
on command no matter where I am, kinda like a labrador crossed with a barista.
(We try to schedule appointments first or last thing so we give up less sleep.
This one is unbearably early. I am so cranky I don't even like ME right
now.)
Really, I am just whiny. It's a dentist appointment not an ER
visit. She is not even close to sick. They are not hurting her. Feisty Pants
is merely pissed at the world and not afraid to let us know. But some days just
seem longer than others. In a few hours, we will be home, done with this for at
least six months and almost caught up with our daily routine. But I do want
those who don't travel down life's roads with a special needs kid to know that
sometimes it is a wee bit tiring. So, please, have a little mercy on us. Kindness
doesn't cost a thing and saves us cranky parents a lot of bail money.
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