Well, American Ninja Warrior is back on so Feisty Pants is thrilled. In
case you don't watch, its a show about athletes running an extreme obstacle
course based on a Japanese game show. She likes the show almost as much as she
liked the original Japanese version. That show absolutely fascinates her. She
could watch/listen to it for hours. We never really were sure why. It's in
Japanese with subtitles which I don't think she could read (subtitles move too
fast). But who am I kidding, Feisty Pants is quirky bundle of awesome
paradoxes. For all we can tell, she could understand Japanese. She certainly
loves when people prat fall into mud puddles so the show is a hit with her all
around.
But now she watches in English so she can hear what's going
on. So she hears a lot about parkour. (The free runners tend to do well.)
And soooo last night when they announced a contestant was a parkour instructor,
she asked if she could take parkour classes. Ponder that. The kid who cannot
stand or even sit unaided wants to go free running. No way in hell do I EVER
want to tell her she cannot. I want her to expect miracles from and for
herself. I grew up with disabled siblings. My family has quite a history of
defying people's (especially medical type people's) expectations. Mostly
because we are stubborn and, to be honest, a little pushy. We just see those
qualities as virtues not vices. And it all starts with thinking "why the heck
not?" My mother once told me that when my sister was born with Down Syndrome (in '59), she went
to doctor after doctor seeking a better answer than institutionalization or a shrug of the shoulders. (It
really was the dark ages for disabled children.) Finally a doctor told her,"
Don't lower your expectations. If you expect a two year old to pick up their
toys, then your two year old should pick up her toys. It's your job to figure
out HOW."
But I cannot think of anyone who teaches a class like that who
would want liability of teaching anyone, let alone a child, with Amara's level
of disability. I can only imagine how much such an instructor would cost- it would
have to be one on one or maybe even two on one instruction. But again, no way
in hell am I willing to simply tell her no. I want her to shoot for the moon. And
even occasionally fail . And then pick herself back up, dust herself off, and
try again. And again. And again, if necessary.
I want my very vulnerable youngest child to know, down in the
very fiber of her being, in the very marrow of her bones that she can do any
damn fool thing she has set her mind on. Even something as stupid as jumping off
buildings for the hell of it. Heck, she has already looked death in the eye and
it blinked first. But how on earth do I figure out this version of how?
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