Last night, Feisty Pants and Goo were watching Antiques Roadshow ('cause we're just gangsta that way) when someone
appeared on the show with a painting by Louis Aston Knight (an impressionist).
To which FP got all agog and declared she wanted it. She does seem to have
eclectic tastes, that one. It did not even have glitter or glow in the dark or
anything she usually requires to qualify as fine art. My first thought, was
"huh, expensive, but good on you, Kid." Interesting to see her tastes come out.
My second thought, however, was "Holy CRAP- this kid is cortically visually
impaired. What does she see in this?"
Seriously, we have no true idea of exactly what her vision is
like. She is legally blind. But blindness refers to clarity. Most people
think that blind means the absence of vision. A perpetual darkness, like having
a blindfold on. But blindness is a whole gamut of blurriness and shadows and
colors/absence of colors and detail. In Feisty Pants' case, her eyes work.
Her brain doesn't quite know how to put the pictures together properly. I have
worn goggles that (as near as anyone can tell) simulate CVI. It's a wash of
colors and shadows but little detail. Think of looking through hammered glass
shower doors. But her vision is kinda like swiss cheese. Most of it is that
blurry hammered glass but in it are small holes (hence the swiss cheese analogy)
where her vision is clear. But for some reason, the holes move. Also, some new
information is coming to light about how people with CVI adapt to it. (Doctors
have finally learned the trick of asking an adult with CVI to best describe the
condition. Honestly, sometimes they need to their heads out of their, umm err,
books.) There is a particular tic to people with CVI -they will spot something
and then immediately turn their head away. (It's a hallmark of cortical visual
impairment, in fact) Turns out that vision is somewhat like polaroid film.
Your brain takes the picture and then instantly develops it. It's so fast, you
don't realize it's happening. But with CVI it takes longer. That immediate turn
AWAY from what they're looking at, is an unconscious way to avoid any more
stimuli so their brain can simply develop the picture it just captured. (The
polaroid analogy comes from a man with CVI who now lectures to low vision
specialists on what it's like to have CVI) And since, it's the brain, not the
eyes there is some hope to improve the functioning.
When FP was an infant, she did not even see the whole color
range. But therapy can and does help this. So now we know she sees color,
shape, and outline. And movement if it is not too fast. And the level of "too
fast" has improved over the years. But we still don't know how much detail she
has. Or how her depth perception is. (And depth perception is actually two
different kinds of perception, near depth and far depth- one is relates to how
the eyes work together, the other is in your brain) Going by her aim at swinging
at a medical professional only gets us to a rough guess. (And THAT has improved
over time too.) And she is very talented at what is known as "cognitive
mapping" which is knowing where things are by memory. (Like the way you can find
your way through your own house in the dark) Which means sometimes she
traversing her world through her mental map as opposed to watching where she
is. And merely asking doesn't work yet. She has always been this way. This is
how she perceives her world. How would you explain blue to someone who cannot
see color at all?
So, now I wonder. What did she like about it? It was
impressionism, for goodness' sake. CVI kids like high contrast and bright colors
and simple line drawings because it is easier for their brains to put the
picture together quickly. They're likely to be more into Haring than
Monet. But she does have those spots of clear vision. And she did tell us
about how pretty it was. Maybe there is more to impressionism than just the
picture. Maybe feelings can be transferred through the art.
Or, maybe my little Artemis Fowl was simply impressed
by the fact it was expensive and therefore must be awesome, so now she wants it.
I am going to be wondering about this all day.
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