Well now, it's been a million years since I
posted. Or three weeks, whatevs. We are finally home from the great hospital
expedition of 2017. Robokid is healing up nicely, barring a mild thrush
infection from all the antibiotics. I do wish we were managing her pain better
but opioids are out - depresses her breathing, as are nsaids -will affect how
her hardware/spine heal and bond together. We are stuck with tylenol and
distraction for the time being. For the most part it's alright. Feisty Pants
is feisty as hell and tough as nails. But from around 6pm to 7pm every night,
she sobs. We are not quite sure why. My guess is pain but it could be pain
plus fatigue or even just the emotional effects of having, as the surgeon put
it, her entire nervous system tinkered with. So her father and I, along with
her nurse, second guess ourselves, hold her hands, and feel like horrible human
beings. Until about 7pm, when she magically stops and the Universe becomes
wonderful (or at least, normal) again.
Other than that, it's just really weird coming
home from a long hospital stay. Feisty Pants has had so many and they never
seem to change. Your world is turned topsy turvy, often with no notice and
breakneck speed. Then the day to day hospital life becomes it's own weird
little routine. Then you are shoved back home. It's like coming home from war
or waking up from a coma. (I'm at least half right there.) The world is exactly
the same but yet for you and yours, it isn't. The house looks the same. The
world is the same. But you somehow are different and yet you need to find a way
to fit yourself back into your old life as if putting on a pair of old, comfy
shoes.
In an odd way, it's a little comforting that my
house tends to a little chaotic. I may be bitching and screaming and kicking as
I put my house back together, and unpack, and shoo out the various lunatics (two
legged and four), and catch up on three weeks worth of laundry. I am definitely
bitching as I try desperately to catch up on paperwork and make doctor's
appointments and get even more paperwork now made necessary by FP's
surgery/hospital stay/shaman treatment/exorcism. But it all gives me a way to
slowly catch up with myself psychologically until I start to see light at the
end of the tunnel, and realize we are truly home at last.
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