Sigh... as I sit here, writing this, I am waiting for a taxi
to take us to Syracuse for an ent appointment for Feisty Pants. A taxi that is
now 30 minutes late. It takes an hour and half to get there. We have an
appointment in an hour and 15 mins. This kind of crap makes me crazy. I hate
waiting. I especially hate waiting times that are thrust upon me. And.... it's
finally here.
So. Now it's about four hours later. Four hours, one very
exciting cab ride (We actually got there just in the nick of time), a doctor's
appointment and a long ride home later. The doctor's appointment took all of
ten minutes. The doctor never even actually touched FP or anything. Not that it
went badly. We went for a consultation about Botox. Which we are going to get
done. In three weeks. Which is fab. They will botox her salivary glands and
that will help to control her secretions and hopefully lead to less pneumonias.
(This has worked in the past.) But this initial consult could have been done
over the phone. Or better yet, if the doc wanted to lay eyes on her via Skype.
Then we wouldn't have had to drive three hours for a ten minute meeting. And
Feisty Pants would not have cried all the way there. (Botox shots for CP and
salivary problems are painful and she very clearly remembers getting them in the
past.) Most of all, we would not have had to watch Goo, whose nickname should
be NeuroticallyPrompt Pants, seethe all the way there because he thought we were
going to be late.
To make matters even more fun here in Feisty Pants Land, we have
another appointment that will go about the same way on Thursday. FP is having
her G-tube changed. It's a REALLY simple procedure. Painless and takes all of
about a minute. But the appointment takes FOREVER. First we get to the
hospital GI lab, full of grumpy older people who had to fast to be there and who
do NOT want to watch cartoons and don't appreciate FP complaining nonstop that
she does. While I fill out about 30 minutes worth of paperwork. Then a nurse
has to go over every question I just answered like I am a spy being debriefed.
(What exactly is going on these labs I don't know about?!?) THEN we go back to
a procedure room where Feisty Pants finally gets to watch good stuff but then
Goo is now complaining about the wait and when can we go find coffee anyway. Then the
doc finally strolls in as if he has been waiting for us, takes approximately 90
seconds to do the tube change and strolls on outta there like he just dropped
the mike. While we wait for the discharge paperwork.
Much like people who are not poor do not realize how expensive it
is to be poor (poor people get charged more for EVERYTHING while being told it's
their fault) extremely busy people find their lives consumed by stupid time
wasters. I know we always seem like we are in a giant hurry. That's because we
are. We sleep in shifts and have to arrange everything around FP's eating and
med schedule. So if we seem a little manic it's because we are trying to get so
much stuff done in very small windows of opportunity. We are actually trying to
be very patient with you. So how about you all show a little love back and get
off the stick, please?
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