Tuesday:
When I woke up this morning, I fully expected feisty
pants to be home by this afternoon. So I didn't go in to the hospital (her
father has been staying this time). I stayed home and cleaned and tried to
catch up on things so that when she got here we could have a fun evening watching
whatever FP wanted. But at 10 am no doctor. Same at noon. And 2 pm. By five,
when the doc did come in, the nurses had noticed a pattern of low sat rates and
funny heart rates. So no discharge. And I could have blown off the house and
spent the day with her. Sigh. Instead, here I am waiting for tomorrow with only
Google and WebMD to keep me company. Now I am concerned about her brain
tumor/ebola/prostate cancer. Great.
But that's kind of the way it goes with a feisty one. All the
every day trials and tribulations seem magnified because it's more complicated
juggling life when you have to add dozens of doctors appointments and
medications and therapy sessions. Then factor in physical logistics, emotional
logistics (some feisty kids find every day situations overwhelming in a myriad
of ways), and, my favorite, sleep deprivation. Now, just to be thorough, throw
in all those fears that come nag at you at three am. What if she is getting worse?
What if they want to ship her out? What if we have to skip Christmas this
year? How much snoring and farting can an 11 month old dog do at 3 am, anyway?
(Maybe that last one is just at our house.)
Wednesday:
So after trying to keep busy and get some holiday
stuff done (What day can be a complete waste if it ends with washing chocolate
out your hair?) I tried to get up early and rush in to stare at my kid and worry
in person. Only to find her looking normal. Her sick version of normal, but
normal nonetheless. Sat rates still suck, but holding on the O2. Cranky as
hell, but that won't change until the say the magic word (discharge). Heart
rate down a little bit. Still a very sick kid. But not dangerously so. And
still willing to argue a little bit with the doctor. (Nuh-uh, she is too ready
to go. Just that no one asked HER. And btw, owowowowowow her IV site is just
KILLING her, maybe they should take it out???) So, now I can breathe.
And, that's also the way it goes with a feisty one.
Just when you're ready to face whatever. You've girded your loins and screwed
your courage to it's sticking place. Put on your best brave face and waited for
someone in scrubs to ruin your day/week/year/life. They don't. You catch your
breath and reboot. And get a little break in the storm. And the day seems
blissfully uneventful. And my three am demons get a little smaller and less
loud. If only I could also dampen the sleeping noises (and smells ) of
Cheweverything Pants.
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