When you are a special needs parent, you
get very, very good at the big things. The oh my god the helicopter's coming
things. The call 911 and get the oxygen going things. The she's been
transferred to Timbuktu where's my suitcase things. You get really good at the
tiny things. Paint in her hair? Clap for her- it meant she actively
participated in school. Coughed ick all her shirt at the store? Hit the dollar
store for a tee and change in the car. We can always tie dye it later if it's
ugly. Said a new word clearly? A new word that is NOT um, err, mother
superior? Calmly explain that swear words are for saying to speech therapists.
They'll appreciate the effort it took.
What you are not good (at least what we
are not good at) at are all the weird, in between things. Is it a minor cold
or the start of pnuemonia? Is she crying due to allergies or is she about to
have a medical crisis? Is she hiccuping because occasionally human beings do
that or because her stomach meds need to be changed? In this case, is she
getting sporadic low grade fevers because she is working on molars (happened
before)? Or is she getting them due to microaspirations due to not swallowing
well (happens occasionally)? Or is she reacting systemically to an allergen in
her environment (yup, we do that one too)? Is she just been physically stressed
due to her last illness and is what one doctor called "temporarily temporally
instable" (seriously)? OR, since she just got off antibiotics, have we gotten
into a superbug and the antibiotic didn't work and she is about to get really
sick (been there too, dammit)? We cannot tell right now. And will not know
until she either gets better or gets worse. Sigh.
So here we go again. It's time for
special needs parent physics. You'll sit around and stare at your kid and do
math at five gazillion miles an hour in your head. Do I have cab fare on me?
Is the cell phone charged? Where's the med list? Is it up to date? Is that a
cough? What's her sat rate? What's her temp? Is she cranky because she's sick or
because I'm annoying her every five seconds? Do she look pale to you? Do her
eyes seem less bright? How about now? Now? Is she sleepy because she doesn't
feel good or simply because it's nighttime and I've bugged her alllll day? And
Feisty Pants is feisty and eleven, so she will milk it. "Don't feel good, need
a donut" "I'm sick, put on dizzy (disney)". I'll be lucky this weekend if I'm
not the thing bursting into flames.
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