So another Halloween has come and gone. It was awesome. No one was sick. The
kids' costumes were just the right amount of "pooky". Feisty Pants was the
cutest werewolf ever. (Don't tell her. It will break her heart. She knows she
was absolutely terrifying.) Hippie Pants was the correct combination of cute
Little Dead Riding Hood and cartoony gross out. (Her hanging eyeball was a huge
hit with Feisty Pants) I would love it if we were those awesome kind of parents who
turn their kid's wheelchair into construction equipment or movie house props.
But, alas, we are completely happy if no one throws up in their own candy bag.
The girls once went trick or treating just as they were coming down with Swine
Flu. We realized something was wrong, when they both came home, took off their
costumes, and cried from exhaustion. (The oldest was in college at the time.)
All in all, this one was a blissful breeze. (Only one crying jag- because
Hippie Pants didn't get her make up on fast enough for her
sister.)
And so now, we are in one those in
between times. One step away from back to school and Halloween, one step before
Thanksgiving and Christmas. It's weird, being the parent of a disabled or sick
child. You find yourself finding comfort in the strangest places. The quiet
hum of a NICU where everything is hushed, including the lights. An ER at three
am, when your family is one of only a few there. Waiting rooms of doctors and
therapists first thing or last moment of their day. Hospitals at midnight, when
its just you, a few nurses, and a security guard looking for the best vending
machine. You find comfort there, because there is not much else you can do
except, slow down, hold your child to try reassure yourself and them, and wait
for the crisis to pass.
Old folk tales say magic exists in
the in between places. I think there something to that idea. And this time of
year, between the back to school pumpkin spice fueled fall and the rush to
cookies and Santa, is definitely an in between place. Its getting dark
earlier. It's cooler and quieter. The world seems to be slowing down just a
bit. Not a ton of stuff to do this time of year, except rake up the leaves and
wait for the next round of activity. So, for all those out there in a hurry
and stressed out for whatever reason, especially, for anyone with a sick or
disabled kid, I wish you an in-between time. Do what you can when you need to,
and then rock them to sleep. And simply listen to world grind along without you for
a few minutes. Even in the midst of chaos, those in between moments will
sustain you.
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